One military couple is suffering through the worst fate that can befall any parents -- their 3-year-old son, Matthew, has a fatal, incurable disease and they can do nothing but watch his condition worsen and wonder how many days left they have with their precious boy. Even more horrible, the pair found out their son has the rare disorder, called Krabbe's, because both of them carry a gene for it. So they've decided not to have anymore children. Meanwhile, the Army couple, Luke and Carrie Beasey, want to warn as many as possible about the signs of this devastating disease.
The Beasey's son, Matthew, started off as a "normal child," Luke, an Iraq war veteran, told The Savannah Morning News. But soon he was having "little seizures," and eventually was having up to 60 seizures a day. For a long time, no one could seem to diagnosis his condition.
Eventually the devastating news that Matthew had Krabbe's was confirmed. There is no cure for it, and it is always fatal. While the couple say that Matthew has his "good days," he is at the point now where he cannot walk, play, or even hold his head up. They say they will not go to "extraordinary measures" to keep him alive longer.
Because the condition is genetic and the couple have the extreme misfortune of both being carriers of the gene, they have decided to not have anymore children.
The couple say they are grateful for the support and assistance the military and military families have shown them. Luke says talking to other soldiers has helped him cope. And friends have also set up a donation bank account so they can buy some of the things on Matthew's wish list, such as special swing that would allow him to sit outside and watch his dogs.
Nothing can make up for this family's suffering, but at least they have the support of the military community, and others. And hopefully they can help bring attention to this disease, making more people more aware of it.
Have you heard of Krabbe's disease?
Image via US Army Africa/Flickr