This 2-Year-Old Could Die If He Eats Anything Other Than Fresh Peaches


Caroline Sarah Masson/GoFundMe

While the majority of us don't tend to completely take food for granted, we often forget how lucky we are to be able to pick and choose what we consume freely. For people with severe food allergies, eating can be more of a pain than not. And for 2-year-old Micah, an extreme, life-threatening food allergy has left him unable to eat anything aside from fresh peaches.

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At only 6 months old, Micah was diagnosed with food protein-induced enterocolitis syndrome. Commonly referred to as FPIES, the food allergy wreaks havoc on the gastrointestinal tract and causes immediate and severe vomiting and diarrhea. 

More from CafeMom: Boy With Severe Allergy Eats Peanuts Safely, Thanks to Amazing New Treatment

According to the American College of Allergy, Asthma & Immunology, FPIES almost solely affects infants and young children and usually occurs when dairy or soy enters the body. Though, for Micah, it is much more severe, causing him to be affected by pretty much everything he eats. "The first solid food we trialled was banana. He proceeded to vomit four hours later, six times in a row and pass out, pale and almost blue," his mother, Caroline Masson, told Global News

The now-2-year-old only has one food he can eat safely without an adverse reaction: peaches. If he consumes anything else, he begins to feel the full effect of his allergies -- intense stomach pain, vomiting, diarrhea, mucus, acid reflux, rashes, and even hypovolemic shock that results in an extreme amount of blood loss. 


Micah's FPIES Life

These reactions are certainly consistent across all children who have FPIES, but the severity of Micah's reactions is a bit unique. According to the National Organization for Rare Disorders, FPIES is still uncommon, and because of "the lack of recognition in the medical community, and frequent misdiagnosis," it is difficult to determine how many children truly have it. Scientists have yet to pinpoint a genetic or environmental cause for FPIES, but they have noted that around 40 percent of children affected by the disorder have a history of food allergies in the families. 

While most children with FPIES grow out of the allergy by about 3 or 4, Micah's mother claims that he is unlikely to do so because of the severity of the 27 food allergy triggers he has combined with other issues. In addition to FPIES, Micah lives with DiGeorge syndrome, an immunodeficiency disorder that ultimately results in poor development of many vital systems in the body. He also has a 15Q13.3 micro-duplication, a genetic condition that causes his 15th chromosome to have an extra piece. Because of DiGeorge syndrome, 15Q13.3 micro-duplication, and FPIES, Micah hardly ever has a day of peace. "I don't think I have seen Micah have a day where something is not affecting him in some way or another," said Masson. 

Because of his very specific diet, Micah eats much less than the average 2-year-old -- only about once a day, his mother shared. As frozen, canned, and dried peaches usually contain additives that cause problems with his FPIES, only fresh will do. "Living in Quebec, let's just say peaches are very hard to find off-season," said Masson. "We are in the process of trialling rabbit broth. It seems to be going well, but after two weeks, he is only getting about 1/2 teaspoon worth a day. Not much."


Micah's FPIES Life

Micah also has a special food formula that he is allowed to drink, but Medicare will only pay for it until October 2018, at which point he will be forced to undergo more tests to prove his dairy allergy. Masson says this process is not ideal. "To challenge dairy would mean that we are hospitalized yet again for over 24 hours and watch my baby vomit nonstop and go limp in my arms because that is one of his biggest trigger foods," she said. "Don't get me wrong, if that's the only way to get him his formula, we know we have no choice, but who wants to watch their child suffer like that?" 

Because of his diet, Micah is underweight and on the verge of being diagnosed with "failure to thrive" (FTT). If this were to happen, the 2-year-old would be hospitalized and forced to use a feeding tube. 

More from CafeMom: How to Tell if Your Baby Has Food Allergies

Hoping to avoid this and raise money for more food for Micah and pay his exorbitant medical expenses, his family has created a GoFundMe campaign. "There is always that constant fear of not being able to feed your family and that really really heightens the stress level to maximum," the mother explained. So far, the family has surpassed their goal of $1,500 and has received $8,775 in donations. They are still accepting more. People can also keep updated on Micah's condition at the family's blog, Micah's FPIES Life.  

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