Randy Rogers Is Using Tragic Loss of Baby Girl to Help Other Grieving Families

Randy RogersYou see so many upbeat stories about celebrity babies in the news, but country star Randy Rogers recently made headlines for a different reason. Earlier this month, he and his wife suffered the heartbreaking loss of their newborn baby girl. Now they're coming out to share more detail on their personal tragedy.

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Rogers’ daughter, Rumer Rain, was born June 3 and passed away just 6 days later due to a rare genetic disorder. The baby had nonketotic hyperglycinemia, an incurable disease that impairs the brain, causing seizures, breathing and feeding disorders, muscle limpness, and lethargy. The disorder affects about 1 in 66,000 newborns in the United States. Ultimately, there was nothing doctors could do to save her.

Rogers told People that despite the tragic loss, he’s grateful for the extraordinary medical team that helped care for his daughter. He and his wife have teamed up with Seton Medical Center Austin to provide nesting suites -- rooms where families can stay while their babies are in the NICU -- for families who may not have the option: “Once you find out there’s something wrong with your baby, you’re scared to death. You don’t want to leave their side … Our nesting room enabled us to still be there for Rumer and hold her around the clock.”

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Though it’s incredibly sad and scary when something like this happens, it’s also refreshing to see someone in the public eye speaking so openly about such a personal loss. People lose children to genetic disorders and other complications every day, and so often they suffer in silence because child loss is still such a taboo topic. It’s scary to think about all the things that can go wrong, so we avoid the subject at the expense of alienating those who most need our support.

Sharing stories is an important part of healing, but it’s also a way of comforting other families in their grief and starting real conversations about loss. Losing a child is already one of the most difficult things a person can endure. Talking about it ensures no one has to endure it alone. It’s inspiring to see the Rogers family taking action in their daughter’s name and doing so much for others. There’s no doubt that many will be helped by their openness and generosity.

You can go here to donate to NICU families in need at Seton Medical Center Austin.

Have you dealt with the loss of a child? What helped you most in the grieving process?

 

About the Author: Ashley Austrew is a freelance writer who loves tacos, Target, and screen time. Her work has appeared on Mommyish, Scary Mommy, Modern Day Moms, and more. You can read more on her website or follow her on Twitter.


Image via Instagram

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