This story scares the hell out of me.
Rory Stanton, 11, cut his arm playing basketball. A few days later he went to his pediatrician and then to the hospital emergency room. The doctors agreed he was suffering from dehydration -- he was given fluids, told to take Tylenol, and was sent home. He died 3 days later.
Rory, it turns out, was suffering septic shock from a staph infection.
As a parent, an undiagnosed or misdiagnosed medical condition that turns fatal is one of my biggest fears. When I was in my twenties, I had a 9-year-old student who I saw on a Thursday -- and by the following Tuesday I was attending her viewing. If you’ve never had the misfortune of attending a child’s funeral, trust me, it's something that sticks with you forever. The pain and emptiness that the loss left with her parents is something that I never want to experience.
This was preceded by my nephew’s leukemia diagnosis a few years earlier. He was three!! Who expects a three-year-old to be diagnosed with life threatening cancer? A child being gravely ill can shock you into a new state of existence. You begin to question all that you ever believed in. It creates a fear in you that compels you to see passed the moment and to do anything and everything possible to save that child. The alternative is too gruesome to even consider.
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Rory Staunton had a sick stomach. My nephew had bruising. My student had a general feeling of malaise. In each case, it took more than one return visit to the doctor’s office for the doctor to make the correct diagnosis. Unfortunately, some illnesses progress faster than others.
This is why we parents must follow our guts and, in some cases, pursue treatment if we feel that the medical professionals are not curing what ails our child. As parents, we know our children and sometimes we can see things that a professional who only sees our child on the occasional basis might miss. We have to be the advocates for our children no matter what. Even if it may feel uncomfortable or like we are stepping on other people's toes, we have to do what we feel is best for our children. The cost is too high.
From my own experience, I always follow my gut feeling. If I feel treatment is not working or that there may be something more, I have no problem pushing for additional testing or getting a second or even third opinion. I can mend fences and survive hurting a doctor’s feelings; the same cannot be said about the loss of my children.
Rory Staunton’s parents kept taking him back. They did the right thing but the doctors missed it. The doctors figured out what was wrong too late to do anything about it. Sometimes we have to do things as parents that push us out of our comfort zone in order to do what’s best for our children.
What would you do to save your child?
Image via dreamingofariz/Flickr
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Comments 56
You absoLUTEly must advocate for you and your loved one's health and medical care! They can't keep up with the increasing diversions form medical care, not to mention there're inconsistent training/backgrounds. I will step on the neck of a provider until I know all is being considered before being written off with a scrip or common sense advice. It's all triage anymore, no real doctoring or care when you need it. Fortunately I have a great team, but fear I'm not in the majority.
In the case of this boy, staph is all over athletic equipment, then to be reexposed to it at an ER... the Dr should have presumed that and took blood and cultures. So so sad and so so unnecessary. Heart goes out to family.
My mom did for me at age 17. My spleen had been ruptured for weeks and slowly bleeding internally. Since I have a high tolerance for pain, I had 2 units of blood in my abdomen before I had pain- mom finally insisted on an ultrasound and emergency surgery saved me with hours left in my life.
You know your child- you know when something's not right- you have to keep pushing.
Alas! Such a painful news! Recently, I also lost my friend Tan. She had a cut and consequently went for medical aid. The doctor, after dressing up her wound said she would be fine. But a few weeks later my friend perished. On querying further, we came to know that she was actually suffering from septic and the infection had spread in her entire body. Since that day, I have lost faith in our medical team; I'm getting goosebumps even as I write this post.
My three year old niece died last summer from rocky mountain spotted fever. My sister took her to the hospital the day the tick was removed bc she had been camping with her father and had gotten a pretty bad sunburn that my sis thought needed attention and she pointed out the tik bite at that time. Took her back to er two days later bc of fever and rash and was diagnosed with roseola. Back to the ER the next day with higher fever and was diagnosed with measles despite having had the MMR vaccine. Three days later she was dead. She didn't slowly deteriorate in a way that would make you think, i need to take her back to the er bc she's dying. She acted like a normal sick little girl until the septic shock set in and by then it was too late. I think parents want to trust that medical PROFESSIONAL knows what their talking about and doesn't want to be one of the annoying WEB MD moms but sometimes you have to. There isn't a day that goes by that we don't as a family wonder, what else should we have done?