Try this creepy news from CNN: When our children were born, the hospital carried out newborn screening tests that included the collection of their DNA.
I think I knew that at the time. The nurses probably mentioned it, but I was too in awe/in love/drugged up/exhausted/in pain (likely all of those things) to really think about what it could mean.
The government collects your child's DNA for several reasons. To screen against and prescribe treatments for illnesses, such as cystic fibrosis. A little girl in the CNN story tested positive for that genetic disease, but after further testing, it turned out she didn't have it.
It's also kept of file in case someday, God forbid, authorities need to identify the body of a deceased child.
I get both of those reasons. Fine.
Now the sort of creepy part. Some states will destroy the DNA after that critical testing period. Others can legally hold on to it indefinitely. Why? Sometimes they turn it over to researchers who do gene experiments on it. The scientific community loves this. They wouldn't be able to get baby DNA any other way. They're not supposed to have your baby's name attached to it without a parent's consent, but sometimes they still get a hold of those details, according to the CNN piece.
That could mean so many things, but do you really want the government or health insurance companies knowing your child's entire genetic history? What if your child can't qualify for insurance someday because a gene test came up positive for something that turned out to be nothing?
I hate to react all alarmist to reports like this. An expert quoted in the piece says parents have nothing to worry about, that this is all routine, the government's way of protecting children.
But it reminds me of that episode of the X-Files where Mulder and Scully discover the abandoned warehouse in West Virginia. Inside: rows and rows of files containing medical info and samples on millions of the country's children. Oooh, and that was right before lights flooded the building, and those aliens came ...
See what happens when the government knows too much, see!
Will you be marching into your state office demanding they destroy your baby's DNA, or could you care less about this?
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Comments (7)
Another reason I am happy to be homebirthing. No one has the right to hold onto or disperse my or my childrens genetic material without consent, period.
I called about this just in case my homebirth ended in me going to the hospital or in case I chose to have the test at one of our checkups. They told me that it stays on file for my state for up to a year and then they destroy it. This article has me curious about if they lied to me. I think it is MAJOR BS that they keep this stuff, give it out AT ALL, and that they do it without the parent's consent. They did EVERYTHING to my son without telling me, asking me, I had NO options when he was born. The states have NO overriding interest in my child's well-being, none. I am more interested in my child's health and happiness than the state or country is. They shouldn't have or get this information.
I had my baby in Puerto Rico, which the US government basically ignores. I couldn't even donate or keep my cord blood. So I am sure my babies DNA is unrecorded as of yet.
I seriously have no idea if this was done for either of my boys. I will have to read the article and do some searching to see if Pennsylvania does this and what happens to the information.
I think it's a good idea with consent PRIOR to the birth but I don't like the idea of it done without us realizing it. If there was a way of knowing ahead of time that my child had certain genes that predisposes him to cancer, uncurable diseases or something else, I think I would want to know, but I'm not sure that I would pay to have it done or just allow the state to have this information. I also don't think I would mind it going to the research facility of MY chosing if it could help find a cure.
What a scary thing.
Ok, so now that I read the article, is this what the heal sticks are for? I feel so stupid about this whole thing now.
According to the article PA only keep theirs for 3 months, then they are destroyed. I sure hope so.
I don't think they should keep it without consent.
i didnt know about this