Dying 9-Month-Old's Parents Have a Long Bucket List for Her Before They Say Goodbye (VIDEO)

Heartbreaking 17

quinn linzerHave you had a good, long cry today? Get out the tissues, because there's no way to get through Quinn Linzer's story without tearing up. She's just 9 months old, but the Long Island baby has a to-do list that could exhaust a grown woman.

Only Quinn won't ever be a grown woman. Doctors have told her parents to "go home and love her" because they can't treat Niemann-Pick Disease, Type A, the rare disease little Quinn was born with. She isn't expected to live much longer than a few years. That's where the to-do list comes in.

The Linzer family has already checked off about a dozen experiences they wanted to make sure their daughter has while she is on this planet. They have nearly 40 more to go.

The list itself will make you weepy. It has everything from huge undertakings -- Disney -- to simply playing with a puppy.

But what really got me was listening to Quinn's parents describe how they came up with the list. As Eileen and Brett Linzer explained:

We're not concerned about crossing off each and every single item. We're trying to do what we can, what we think will be fun for her.

Fun for her.

How do we decide that for our kids?

Because really, this is something all parents need to think about, not just parents who are facing a devastating medical diagnosis. Even if we're the lucky ones who get to see our kids graduate and head off for college, our time with them is still precious, and we need to figure out how to use it wisely.

So what do you do?

Do you try to repeat all your favorite experiences from childhood? Do you try to give them all the experiences you missed out on as a kid? Do you try to cater to their likes or try to expand their horizons?

I'm seven years into this mothering thing, and I still haven't figured out the perfect recipe. So far we've done a lot of things I never got to do as a kid and some of the things my husband and I loved most as kids. We've tried to cater to her interests and tried to make her step out of her comfort zone. And we're still learning. We're still doing.

Maybe that's the key? To always have a to-do list with your kids, not necessarily to check off each and every thing on it but to make sure you never stop doing ...

Check out this sweet little girl and her family and tell us ... what's on your to-do list?


Image via Brett Linzer/YouTube

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Aeris... AerisKate

Thank you for showcasing this wonderful family.  I have come to know (and love) several NPA families online over the past 18 months or so.  Another wonderful NPA family is the Ingram family (http://www.oursonnylife.com/).  They are currently doing a neat fundraiser for Quinn and her family.  The details are on the blog.   My hope and prayer is that increased awareness of these awful and rare diseases will lead to more research funding and hopefully treatments and cures! Diseases such as NPA really do steal so much from these families.  Supporting them with kind words, actions, prayers, and/or donations gives a little bit back. 

looki... looking4mychild

She's a beautiful little girl, and that is so incredibly sad. God grant them a miracle, may her days on this Earth be long happy and healthy.

Jenifer Lamoureux

this has inspired me to make a list for my boys.. altough they are not ill,i want to make sure they have all kids of life experiences.. thank you quinn for reminding us that life is to short and we should always make our kids feel special and loved..

Misty Roberts

Okay, may I say WOW!!! It must be a horrible thing to be told to "go home and love her". I applaud these parents for trying to make every day count, not only for their daughter, but for the brothers she will leave behind. My prayers and heart goes out to this family, and every family that has or will suffer the loss of a child. As a mother of 4, I am not sure if I could handle it. God bless them!

Dawn Cooper-Haworth

She is a angel here on earth. My niece was 1 month shy of her 3rd birthday before she became and angel in heaven. God Bless this sweet lil girl.

nonmember avatar REGINA HALL

My heart aches for this family and it makes you hold your children alittle tighter and fall to your knees and thank god for them. Pray for this baby and this family. BORROWED ANGEL

raeyl... raeyliNlilysmom

May that wonderful family be blessed with MANY years with that baby. Lots of prayers and love.....this is so heartbreaking.... God bless this family

Nicholas Steven Ulakovic

Never thought about how long my children would be with me,but always tried to do as much as I could possibly do under any circumstance,I thought most people do that any time and every moment when their kids are growing.We most of the time had no money,but I always enjoyed playing with my kids and when we did go anywhere we had fun.This makes you just want to cry,because they may never have a tomorrow like almost everyone else.So sad,my heart goes out to this family.Wish that it could be all a dream or that a simple cure was there for them.My prayers and thoughts of better tomorrows for them.I just can't imagine the pain they first felt in finding out about this disease.Don't think I would have accepted it so graciously,but feel they will fall apart once she is gone.God bless you both,but God bless this little angel Quinn,because she did have life that ment something and helped others to understand and come up with solutions.

hexxuss hexxuss

When my father passed away, my grandmother said it best "No parent should ever have to bury their child" - I think many people share that sentiment. MY heart breaks for them.

Christy Andrew Jackson

i hope they are work free and spend every min with her this is so sad!!!!


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